Well, this is the end of #MillionsMissing2021 and the last of my #MEAwareness posts for this month. (I'd say for this year, but we all know that isn't likely.) Today, Friday, 5/14, is a day to Connect with Community via #MEAction's "Gatheround" Community Meet & Greet at 12pm-1pm (PST) / 3pm-4pm (EST). Hope you are able to attend! At Wednesday's #MillionsMissing2021 global event, they announced a new research initiative: #MEAction's Chronic Illness Survey Adventure (Symptom Cluster Characterization in Complex Chronic Disease), a survey-based study to probe more deeply into ME/CFS and Long COVID, as well as the co-morbid conditions POTS (Postural Orthostatic Tachycardia Syndrome), hEDS (hypermobile Ehlers Danlos Syndrome; which I have), and MCAS (mast cell activation syndrome). As they wrote in the email: This ... Continue reading →
